Seizures and grace

Person in distress.

My late husband Colin had epilepsy. It sounds like such a little word, but it had such major consequences. He was  unfortunate, in that his epilespy was intractable, and so he would have 4-6 tonic clinic seizures a month, always when he was asleep.

A seizure would start with a loud guttural shout, the change of colour of skin and shaking of limbs, and then his body becoming more limp, and  the gradual restoration of a more rhythmic natural breathing occurred. It could appear pretty scary. Colin was again unfortunate, in that he had long post-ictal periods, so his brain function would not be fully restored for days.

My heart goes out to all who live with this disability. I know that many people have epilepsy that is well controlled by medication, and they have a good quality of life. However for those whose epilepsy is more difficult to manage, my prayers are especially with you, your family and friends.

I guess this is where the grace comes in. It seems like grace, when people around you are understanding. Grace when people call an ambulance when some one has a seizure on the street. Grace when people choose not to walk by on the other side of the road.

We were fortunate too, to have good support from various organisations, including Epilepsy Connections. This organisation provided great practical support, as well as a brilliant befriender. From another similar organisation, we found another support worker, who understood the nuances of how seizures can affect you, and was a brilliant help to Colin, even in demanding and unusual situations. So much grace.

Sadly I know from much personal experience how difficult it can be to support some one living with epilepsy. However it it certainly never dull, and teaches you much about love!  I hope that as a society, we might be better informed about seizures, and more open to learning, and being supportive, and I am grateful for all who work in this difficult area of medicine and social care.

In the bible, Jesus often met people having seizures, and was able to heal them, as in Matthew 4: 24. My prayer is that there would be many opportunities for healing for people with this condition.

Gracious God, You want all people to be well, to be loved, to be at peace. Yet in our world we see such suffering and illness, including epilepsy, cancer and other diseases and conditions. Lord Jesus bring healing, through Your love and power, through medicine, and through wise individuals, willing to go the extra mile. Holy spirit, when people are ill and distressed, by your grace, may there always be some one there to care, to helpfully intervene and to bless,  for in that way Your kingdom comes, Amen.

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